Endometriosis and Me

In response to:repairs

Sun, 02 Sep 2007 10:02:06 +0200

I feel as if i know you - been through a lot of what you have endo etc. please keep writing your very gifted
claire x

In response to:Death of a friendship. Two in fact.

Wed, 20 Dec 2006 19:53:16 +0100

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In response to:repairs

Mon, 27 Nov 2006 06:09:17 +0100

Let me know if you start another blog -- would love to keep up with you. I'm so glad you're feeling better and I'm so proud of you, you know?

BTW, I've been feeling better, too. What's really amazing is, not only can life turn on a penny but, symbolically, it's also the smallest thing that can make a difference. For me, it was lowering the dose of the pill. Amazing. Just amazing.

Hugs.

In response to:repairs

Sun, 15 Oct 2006 09:58:28 +0200

Well done Pasta; thanks for the kind things you said - they are nice to hear - but much much nicer is to hear your good news - please keep in touch by email if not by blog
love Eve

In response to:repairs

Sat, 14 Oct 2006 22:51:56 +0200

It sounds like that things are getting back on track for you. I do not envy you your problems, but I think you are displaying a healthy attitude. Go girl.
All the best wishes, take care, and look in anytime.
Sue

In response to:news

Sat, 14 Oct 2006 21:47:37 +0200

Thanks ever so much, Eve.

In response to:shopping

Sat, 14 Oct 2006 21:46:30 +0200

Yeah, it is a sort of panicky feeling, very weird.

Thanks for the congrats! it's going very well.

In response to:shopping

Sat, 07 Oct 2006 08:06:43 +0200

Congrats on your new job! :)

I have started swimming, too, it helps so much. And, I too am very sensitive to cold. If I get cold, it's just such a weird feeling, makes me feel all panicky or something. Hard to describe.

(hugs)

In response to:news

Fri, 29 Sep 2006 13:40:25 +0200

Well done - that's great; Will think of you a lot
love Eve

In response to:news

Fri, 22 Sep 2006 17:27:24 +0200

Thanks Welshgirl! Me too.

In response to:news

Thu, 21 Sep 2006 22:10:14 +0200

Congratulations! I hope this is the start of a better time for you :)

In response to:I look well. Apropos of nothing.

Tue, 19 Sep 2006 10:57:31 +0200

Thanks cuddblog!

In response to:I look well. Apropos of nothing.

Mon, 18 Sep 2006 12:12:58 +0200

Thanks. That is very, very helpful.

Hope you feel better soon.

In response to:someone else being insensitve

Sun, 06 Aug 2006 19:03:58 +0200

Hey, you're very welcome. I hope it works out for you and that you don't lose the friend - she might come round yet.

In response to:someone else being insensitve

Thu, 03 Aug 2006 11:18:16 +0200

Thank you, Bluebell. You're right, I don't think I do anyone any favours by pretending I'm OK about listening to things like this. Not at the moment anyway. So I should just gently guide the conversation away, or start taking more drastic measures as per your advice. Thanks for your comment, much appreciated.

In response to:someone else being insensitve

Wed, 02 Aug 2006 14:59:06 +0200

Hi Pastabake - your friend does sound insensitive - she could as you suggest (you sound a kind sort of a person) be just unconcious or not thoughtful of the impact on you, but either way, the impact on you is the same.

I understand too about not wanting to actually say something to let her know she is putting her size eights in it - somehow saying something to her just acknowledges the hurt you might be feeling and makes it worse

So, what can you do?

How about just very politely looking just a bit bored when she gets going on the subject of her pregnancy? Hopefully she will take the hint.

If she doesn't look more obbiously bored!!!!

Resist asking any supplementary questions, don't give her any lead ins that give her implicit permission to share yet more info.

If that doesn't work, tell her about a friend of yours who goes on and on and on about her own life situation, and how that's getting to be a bit of a yawn!

Try behaving nicely but unexpectedly - leave a meeting with her early, or don't stay on the phone as long as you might.

I hope your friend gets the message and your friendship moves on.

Kind regards

Bluebells

In response to:diclofenac

Sun, 30 Jul 2006 15:49:46 +0200

I've just been prescribed diclofenac at the same dosage for my painful knee, and I'm now walking a lot easier while I wait for my operation on my cartilage.

In response to:fate's odd little twist

Fri, 14 Jul 2006 13:50:33 +0200

Thanks Lee954.

In response to:fate's odd little twist

Fri, 14 Jul 2006 06:27:13 +0200

I hope you're successful in finding a suitable job. I know what long-term unemployment is like...and it's not very pleasant.

Good luck.

In response to:yet more wonder drugs! all hail!

Sat, 01 Jul 2006 12:56:42 +0200

Thanks Lifes-Lessons! I'm just starting up with the magesium and I might add the zinc later if I can keep up the amount of supplements I intend to take. It's like a full time job keeping going!

In response to:yet more wonder drugs! all hail!

Fri, 30 Jun 2006 21:35:30 +0200

My kineisologist recommended Zinc and Magnesium - as together they help the connections between the neurons. Just a tip. It made a difference to my energy levels. I take Q10 as it is depleted by the Statins I take.

In response to:the next installment of Pastabake's great endometriosis adventure

Tue, 27 Jun 2006 20:28:26 +0200

I bet you were a fabulous nurse, Eve!

I try and be a good patient, but for too long being a good patient meant smiling a lot and allowing myself to be fobbed off. Now I know more about my illnesses I can have a two-way conversation with doctors and I seem to be getting more out of it. Long gone is the patient who just used to sit in the doctor's surgery trying not to cry.

In response to:Test The Doctor

Tue, 27 Jun 2006 20:22:34 +0200

I sometimes wonder how they get their jobs too! I've been let down a few times in the last few years by doctors too arrogant/lazy/judgmental to try and do what's best for me. Now I find the best way forward is to learn what I can and always have ideas of my own. If nothing else, doctors seem to respect (be scared of) me more and don't try and fob me off (so much)!

In response to:the next installment of Pastabake's great endometriosis adventure

Tue, 27 Jun 2006 06:20:25 +0200

Good luck Helen - at least this man is trying to help; you must remember that what you read on the net etc is sometimes not 100% accurate - all science is 'probable until proved otherwise' and some writers write as if things are set in concrete. Trust these doctors and go with them - they need your full co-operation to get the best for you. No two people are the same and no two people react to the same conditons in the same way. Will be thinking of you.
love Eve

In response to:Test The Doctor

Mon, 26 Jun 2006 18:22:57 +0200

I've worked for Doctors since 1998 and beleive me since working for them I have absolutely no faith in the medical profession whatsoever.

I sometimes wonder how they get the jobs :-)

Mine even asked me how to spell eczema the other day and when they call you in, in front of a patient and ask you what medication to give them. Well what can I say?? I don't even remember going to medical school LOL

In response to:conspicuous absence

Thu, 22 Jun 2006 11:23:45 +0200

Thanks Eve! The geat thing is though that I don't feel tired anymore either. I did for a few days because of the endometriosis, but now I am back to feeling ok again. Since I've got my sleeping pattern sorted with the 5-HTP, tiredness hasn't been a problem for me. Long may that continue!

In response to:conspicuous absence

Thu, 22 Jun 2006 07:14:41 +0200

That is very good - keep going and the tiredness may well get less; so pleased for you
love Eve

In response to:fever again.

Mon, 05 Jun 2006 11:05:29 +0200

it worked out alright, thanks Jeanette.

In response to:fever again.

Sat, 03 Jun 2006 08:13:38 +0200

I'm sorry you've had a rough time of it the past few days. I hope you're able to have a good weekend to make up for it.

In response to:parents. how fucking depressing.

Thu, 01 Jun 2006 17:33:12 +0200

Came across your post and it was so sad. My parents are lovely but they still judge me by whether I'm wearing suitable clothes, had my haircut etc. I tried to tell them what I did but it never really worked, they live in their own world and have their own standards. At least you stood up to your dad, that's a start. Often rolling over and giving in is just seen as weakness. Being your own person pays off in the end.
By the way I think that's great that the Guardian contacted you.